top of page

Belen Blanton: A Walking Miracle and a Life of Purpose

I went to the hospital to visit my friend Belen Blanton, founder of Fundación Estrellita de Belen.

For Belén, hospitals were familiar territory. Her congenital heart disease had made doctors, specialists, tests, and procedures part of her life for as long as she could remember.

As I sat with her husband, John, and her cousin Gloria in the family waiting room, we talked about Belén, and at some point I said something I had believed almost from the moment I learned her story:

“Belen is a walking miracle.”


I meant it literally.

When I went in to see her, the first words out of both our mouths were the same:

“I’m sorry.”

Then we hugged. And we laughed.

Because things between us had been complicated for a while, as sometimes happens when years of friendship, work, personalities, expectations, misunderstandings, and life itself all get tangled together.


But sitting beside her, none of that seemed as important as it once had.

We talked about my children, joked, and cried a little. I left grateful for that conversation, for forgiveness, and for what seemed like the opportunity to begin a new chapter.

That was when I decided I wanted to write this story.

I wanted to tell you about Belén the way I had always seen her:

as a walking miracle.


To understand why, we have to go back to 2020.

How I Met Belen Blanton and Estrellita de Belén

I met Belén when a group of us organized a Venezuelan Christmas festival that everyone eventually started calling El Hallacazo.

One of the first nonprofit organizations to contact us about participating was Fundación Estrellita de Belén.

I loved the name before I knew much about the organization.

Estrellita de Belén.

At her booth, Belén explained that the foundation helped children in Venezuela living with congenital heart disease.

Belen and John Blanton at the "Hallacazo"

Then I learned a little more about the woman standing behind that table.

Belén had been born with tricuspid atresia, a complex congenital heart defect. The operation that had saved her life when she was only a baby had been a palliative procedure, not a complete repair.


And yet, there she was: talking, laughing, organizing fundraisers, and trying to convince other people to help children thousands of miles away.

This woman had once been a baby whose parents were told she probably wouldn’t live to see her fourth birthday.


Suddenly, the name of her foundation meant something completely different to me.

Before Belén began helping her little stars, she had been one of them.


The Parents Who Refused to Give Up

Belén was born in Venezuela on July 22, 1965. When she was only a few months old, she began turning blue and suffering seizures.

Her parents went from doctor to doctor searching for answers until a neighbor suggested that perhaps the problem was her heart.


That suggestion led them to Dr. Iván Machado, a young cardiologist who had studied in Houston. He recognized what others had been unable to identify: Belén had congenital heart disease.

Baby Belen and her mom, original family picture digitally restored.

There was something that could be done, but the procedure she needed was not available to her in Venezuela.

Even getting her to the United States was dangerous because of her low oxygen levels.

But her parents asked questions. They made calls. Someone knew someone. Doors opened.

Eventually, accompanied by oxygen, little Belén traveled to Houston and underwent the procedure that gave her a chance to live.

It worked.


Her parents brought their little girl home without imagining how far that chance would take her.

Belén grew up with limitations. Her hands and lips could turn blue from lack of oxygen, and physical activity was difficult.

At fifteen, after another serious cardiac episode, Dr. Machado danced with her during her birthday celebration and told her:

“You are a miracle. You will always be my little star of Bethlehem.”

Years later, those words would become the name of her life’s work.

But first, Belén had a life to live.

And she intended to live it.

She studied, worked, danced, built a career, became a mother, and eventually made her way to Jacksonville with nudge of her cousin Gloria.


And then came John.

Belén and John

John was a U.S. Navy officer, divorced and also a father. When Belén explained what sharing a life with her could mean—doctors, medications, hospitalizations, uncertainty, and limitations—John stayed.

And if Belén’s long and improbable life was filled with unexpected gifts, John was one of the greatest.


Belén was electricity. John was grounding.

She could walk into a room and somehow recruit half the people there for whatever fundraiser she happened to be organizing.

John was usually nearby, calm and steady, laughing because he knew exactly whom he had married.

He was the quiet, practical balance to Belén’s enormous personality.

And he adored her.


When Surviving Became Serving

Belén’s medical history fascinated even doctors. A palliative operation performed during infancy had, against so many expectations, become decades of life.

There were arrhythmias, infections, hospitalizations, medications, and times when walking even short distances could be difficult.

And then Belén would simply move on to whatever she wanted to do next.


Her joy was not the joy of someone whom life had spared from hardship. It was the joy of someone who understood exactly how fragile life could be and had decided to enjoy it anyway.


For years, Belén wondered why she was still here.

The answer began to reveal itself when, during the COVID-19 pandemic, a Venezuelan mother contacted her, desperately looking for help for her son, who had a heart condition similar to Belén’s.


Belén made calls, contacted doctors, and connected people.

But they couldn’t save him.

His death affected her deeply.

The children of the foundation were never statistics to Belén. She understood their mothers because decades earlier another mother had held a baby turning blue in Venezuela and desperately searched for someone who knew what to do.

Belén had been that baby.


Now another mother was searching.

And the question Belén had asked God for years—Why am I still here?—was beginning to have an answer.


Fundación Estrellita de Belén: The Circle Begins Again

Fundación Estrellita de Belén began with very little and with Belén’s almost irrational confidence that if people understood the need, they would help.

She used her savings, sold clothes, organized raffles, participated in community events, and asked for help.


Belén understood something important:

A good deed rarely ends with the person who performs it.

Her own life was proof.

A neighbor had helped her parents find a path. A doctor recognized her condition. Other people opened doors. An airline transported a critically ill baby. A surgeon gave her a chance.

Belén Blanton advocating for congenital heart disease at the United Nations

Decades later, Estrellita de Belén began recreating that chain for other families.

A parent contacted the foundation. Someone knew a doctor. An appointment was arranged. A donor paid for a test. Someone else found medication, nutritional support, or help with a procedure.


No one had to do everything.

Each person simply became the next link in the chain.

The organization grew to help hundreds of children, but I don’t believe Belén ever saw her mission primarily in numbers.


She saw children. She saw parents. She saw families carrying the same fear her own parents had once carried.


The Belén I Knew

After those first Hallacazos, I became more involved with the foundation. I volunteered with letters, marketing, blogs, presentations, and interviews.

That gave me the privilege of knowing Belén behind the scenes.

And, truthfully, she wasn’t very different.


With Belén, what you saw was pretty much what you got.

She genuinely loved life and people. She loved helping others, her family, and her pugs. She was funny, stubborn, emotional, fierce, and almost never quiet.


Her Catholic faith was part of her, but I believe its most powerful expression was in the way she lived.

She believed there was a purpose in the years she had been given, so she used them.

And many times, that meant convincing the rest of us to do just one more thing because somewhere there was another child waiting.


Friendship, Distance, and Grace

For several years, Belén and John opened not only the doors to the foundation’s work, but also their hearts and their home to me.

And then life happened.


Working together became complicated. There were tensions, misunderstandings, and circumstances that made something I had once loved increasingly difficult.

I realized I needed to establish boundaries, and I stepped away.


Almost two years passed.


Distance has an interesting way of accomplishing things arguments rarely do. It allows emotions to settle and makes some things that once seemed enormous begin to look much smaller.

Belen and Becky together, probably planning the next fundraiser :)

And sometimes, if we’re fortunate, it leaves the door open just enough for grace to enter later.

That is what happened between Belén and me.


The Door Opened Again

And now we return to where this story began.

The hospital.

Two friends looking at each other after almost two years of distance, saying at exactly the same time:

“I’m sorry.”

We hugged. We laughed. We talked about my children.


There was an affection there that distance had never erased.

And there was forgiveness.

I left grateful for the opportunity to spend time with my friend again and hopeful about whatever that new chapter might bring.

That was when I began writing this blog.

I expected Belén to walk out of the hospital, as she always did.


Why would I think otherwise?

She was a woman who hadn’t been expected to reach four years old. And that chance to live had become childhood, adulthood, motherhood, marriage, work, travel, a foundation, hundreds of children, and sixty-one birthdays.


She was still making plans. Still laughing. Still worrying about the children in Venezuela.

And then the story changed.

Belén died on August 24, 2026.

I had begun this as the story of a woman I expected to walk out of the hospital again.

Now I finish it understanding the meaning of walking miracle in an entirely different way.


Look at Everything Her Life Set in Motion

Belén was a walking miracle not simply because the baby who wasn’t expected to survive childhood lived for 61 years, but because of everything that became possible because she did.


Decades after Belén’s parents desperately searched for someone who knew how to save their daughter, other parents began finding Belén.

And now she was the person who knew someone.

A doctor answered a call. A clinic opened a space. A donor covered a cost. A volunteer connected two people.


Each became the next link in the chain.

And sometimes, at the end of that chain, another mother got to take her child home.

That is what Belén’s survival set in motion. Her miracle became someone else’s possibility.

Belén wrote in Mujeres Indetenibles: Abriendo caminos con pasos de esperanza:

“I breathe, and that alone is a miracle.”

She understood something the rest of us forget far too easily: another breath is no small thing. Another day is no small thing.

And neither is a good deed.


In the end, Belén also taught me something about forgiveness.

I thought our conversation in the hospital was an opportunity for us to begin another chapter together. Perhaps, in a way I couldn’t understand then, it was also a gift that allowed us to finish with love the chapter we had already written.

For that, I will always be grateful.


Now I find myself opening my heart again to Estrellita de Belén, because the children are still there.

There are still mothers asking whether someone knows someone who can help their child. There are still little hearts waiting for their chance.

And perhaps this is where Belén’s story becomes ours.

We don’t all have to start a foundation or save hundreds of children.

Sometimes we simply have to become the next person in the chain: the person who makes the call, shares the story, gives what they can, or simply refuses to believe there is nothing that can be done.

Because one small good deed can travel much farther than we imagine.

Belén’s life proved it.


Open Your Heart

Open your heart to the children who need help fixing theirs.

Learn about the work of Fundación Estrellita de Belén. Share their story. Volunteer. Donate if you can.


Become the next person in the chain.

Because somewhere there is still a mother asking the same question Belén’s mother once asked:

Does anyone know someone who can help my child?

Maybe this time, that someone is you.


Shine bright, Belén.

We’ll take care of your little stars.

 
 
 

Comments


© 2023 by Becky de Muir.  All Rights Reserved.

  • Instagram
  • Facebook
  • LinkedIn
  • Medium
bottom of page